MRI

I have 2 MRIs scheduled soon. One will be 2 hours and the other 1 hour on 2 different days. The MRI takes a total of 3 hours but I can’t handle a 3 hour MRI so it has to be split up…oh did I mention I am claustrophobic and I have GAD(anxiety disorder). So I need a sedative, sleep mask, head phones and someone in the room with me. Only because I have been known to try to come out of the machine in the past. I’m already anxious about having to have them done, you would think I would be use to this by now but I am not.

Advertisements

My body is having a power failure…

CHRONIC FATIGUE SYNDROME
I’m having a very difficult time with this symptom…especially ever since it has gotten hot outside. I feel like hardened concrete is attached to my body.

Fatigue is not the same thing as tiredness. Tiredness happens to everyone  it is an expected feeling after certain activities or at the end of the day. Usually you know why you are tired and a good night’s sleep solves the problem.

Fatigue is a daily lack of energy; unusual or excessive whole-body tiredness not relieved by sleep. It can be acute (lasting a month or less) or chronic (lasting from one to six months or longer). Fatigue can prevent a person from functioning normally and affects a person’s quality of life.

 According to the National Multiple Sclerosis Society, 80% of people with MS have fatigue. MS-related fatigue tends to get worse as the day goes on, is often aggravated by heat and humidity and comes on more easily and suddenly than normal fatigue.

I had some blood work done, my blood work showed mitochondrial dysfunction….mitochondria supply the cells in our bodies with energy. So, mitochondria dysfunction is indicated in Chronic Fatigue Syndrome. Which explains why I feel the way I do.

Frustrated & Stressed

I applied for disability on 05/1/2012; I was denied in August. I immediately applied again and I was denied in April 2013. I requested an appeal in April 2013. I have waited 14 months so far only to  receive a letter stating my request for an appeal has been received, this is June 2014. The letter also states that I will be contacted for my hearing date which could take several months. So now I am waiting for a hearing date. Truly unbelievable.

Fatigue

The fatigue is unreal. It’s not a sleepy tired. It feels like concrete is attached to my body. Everything just feels so heavy. Day after day it’s a chore just to sit up in bed. I only have energy to complete one thing so I always say you better make it good girl. Climbing the stairs is like climbing a mountain. It’s only 13 of them but it’s a strenuous task. Once I’m upstairs most times I do not go back down. I just don’t know, this disease robs you of your life and then you are forced to try to figure out how to live again. It’s hard to keep trying to reinvent yourself over and over again.

MS Fatigue referred to as Lassitude

  • Generally occurs on a daily basis
  • May occur early in the morning, even after a restful night’s sleep
  • Tends to worsen as the day progresses
  • Tends to be aggravated by heat and humidity
  • Comes on easily and suddenly
  • Is generally more severe than normal fatigue
  • Is more likely to interfere with daily responsibilities