My Journey continued…

OK so this is a rant…Multiple Sclerosis in short means many scars; meaning that there is damage to the nerves in the brain that is irreversible and there is no cure. So you may know that nothing works in the body unless the brain tells it too and if there is damage to the nerves in the brain and a scar has formed then the signal that the brain would send (let’s say to your heart) is not received the way it should be. That in turn causes that system of the body that the nerve is connected to, to not function properly. With that being said there are 60+ symptoms for MS and each of us that are dealing with MS has different symptoms because the disease affects everyone differently, and a lot of the symptoms are invisible to people we know and interact with. 

When it comes to me I have nerve pain and my balance is off. I have trouble walking. I have a pins and needle sensation in my upper and lower extremities, very little feeling in my feet, muscle spasms in my arms & legs, muscle spasms in my sides at times (that’s called a MS hug). I have had hugs before and that hug I can truly do without. I have trouble retaining information, loss of words when having a conversation, I get lost in familiar places (which means I really should not go anywhere alone), but at times I do. I can no longer feel when someone comes up behind me. Did I say pain, yes I am always in pain. I get confused very easy especially if there are to many things happening at one time. I get severe migraines.  I have depression, anxiety and panic disorders. Sometimes I choke when I eat or drink. Sometimes I have numbness in other parts of my body. Sometimes I stutter when I talk. I can’t tolerate cold or hot temperatures. I have yet to find a balance for that. My peripheral vision is no longer there and I have optic neuritis. 

Those are just my symptoms from the beginning.  Within The last year or so I have developed dysautonomia, which is a heart disorder. My pulse has been significantly higher than it should be. It causes my sympathetic nervous system to kick in and I go into fight or flight mode. I have digestive issues. I am having trouble with digesting my food. I am sure there is something I’m forgetting,but it will come back to me.

So you can imagine  this is a lot for me to deal with; but looking at me it’s easy to say, well, you don’t look sick.” I think that’s a good thing because it means I am making dealing with MS look good. With this illness there is a list of triggers be it food, smoking or hot temperatures for example; on the food list everything I was eating on a regular basis was on there. So I had to change my diet to include mainly fruits and vegetables(which is fine because I’m almost vegetarian anyway). I needed to incorporate food that is rich in antioxidants and I did that. With the other disorder I have developed; I received another food list and on that list everything that I changed my eating habits to is on the list. Now I’m trying to figure out what am I suppose to eat?


6 thoughts on “My Journey continued…”

  1. I remember now, LOL…It came back to me, fatigue, and exhaustion. OMG you can not imagine what it feels like to not be able to complete something because you all of a sudden have no energy. No energy to do anything but sleep

  2. You sure are inspirational. I don’t have MS that I know of, but I do have several chronic illnesses, chronic pain, insomnia, the list is long. It’s all related to some autoimmune disease, probably Lupus, but no one will put a name on the autoimmune disease. My first hematologist told me to see a rheumatologist to be considered for a serologically negative Lupus, but guess what? Every rheumatologist I call won’t see me, once I say I have fibromyalgia. They say sorry we can’t help you. Now, that is very odd to me because a rheumatologist is the kind of doctor that is supposed to treat fibromyalgia. My rheumatologist retired. You seem to handle everything very well. I wish I could be like that. It’s very hard for me to deal with all these diseases and to not be able to work any more. My life is spent, mostly in my bed except to go to appointments. I’m going to have to start following you, as you have truly inspired me with your attitude towards your disease. Thanks for sharing.
    Tammy đŸ™‚

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