My Journey(cont.)…

So, where was I? Oh Yeah,February 2013…

I went to see my PCP…my pulse has been running high for quite a while now. It is 120 bpm at rest reaches 170-180 walking or exercising…He has run every test he could run but the test are normal.He was trying to treat me but He decided to refer me to a cardiologist. However that appointment wasn’t until April 12, 2013.

In the meantime, other issues pertaining to MS were surfacing for instance…I started leaking urine…SO I call my neurologists’ nurse…she asked me if I had natural childbirth with my children…I replied, “yes.” She said most women at my age who had natural child birth develop urinary issues and for me to do KEGEL exercises. I have been doing KEGEL exercises all my adult life that is not the issue.

So,I schedule an appointment with me gynecologist. She says that it has nothing to do with childbirth…that it is a symptom from my MS and she would like me to see the Urinary Gynecologist in her office. She said and I quote, “_*He’s*_ wonderful.” Red FLAGS went off…I do not, I’ve never and I won’t see a male gynecologist…It is in my record. It is a serious issue for me. So I say to her, “I can’t do that.” She Replies, “Why?” I replied, “It’s in my chart why I can’t.” So, I go on to say, “If you remember I was molested from the age of 4 to 12.” “I have an issue with trust and an issue with MALE doctors in such a personal space of mine.” She replied, “You trust me don’t you?” I replied, “Yes.” She replied, “He’s the best in this field and I would prefer that you see him.” I said, “ok” reluctantly and schedule the appointment that is not until April 24th.

In the mean time, the day arrives for the cardiologist. I am being seen for tachycardia. The visit goes well and is very enlightening about certain symptoms I’ve been having every 3 months or so and no one knows what it is. These symptoms started in July 2012. All of a sudden I become anxious and numbness and tingling creeps all over my body(from head to toes). All of my muscles stiffen and my thumbs fold under my hands…I am unable to speak. I have tunnel vision. I can’t lift my arms are my legs. They are very heavy. I have to go to the bathroom and I feel like I’m going to pass out. The cardiologist says you have “Dysautonomia”. This is a debilitating condition by itself but it is also one of the symptoms for MS. OMG!!!! it has a name, I was so relieved. I couldn’t believe there was a name to this mysterious thing that keeps happening. So then all I wanted to know is can we fix it? But then I read up on it…and realize dysautonomia has the potential to be life threatening as well.

Sheesh I didn’t realize I had so much to say…I will return.

Peace & Blessings


2 comments on “My Journey(cont.)…

  1. Gash it certainly just gets worst. I really hope you have alot of family & friends for support. Thank you for sharing your journey with me. I really appreciate it and shall follow your journey. I hope things are not all bad, I honestly don’t know how you cope. What a star x

    • It’s not all bad I do have good days. I just take one day at a time and I just deal with whatever that day brings me after I wake up. Yes I do have my family but I never really had a lot of friends and the friends that say they are friends are rarely around if ever.
      Thankyou for your compassion.

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